Every Second Counts Campaign

“Every Second Counts” is a call to action and a vivid exploration into the lives of those affected by Usher syndrome, a rare genetic disorder causing the progressive loss of combined deafness and blindness. The campaign underscores the sense of urgency felt by individuals living with Usher syndrome, who are seeking to live full, meaningful lives, while actively striving to find effective treatments and ultimately, a cure.

The “Every Second Counts” campaign is featured on nine iconic billboards in the heart of New York City – Times Square. The billboards showcase the powerful photographs capturing the diversity of the USH community from our Shine A Light on Usher Syndrome global portrait exhibit, alongside the arresting footage of Rebecca Alexander, a symbol of strength and the face of our campaign.